Wednesday, February 25, 2009

I'm back!

Sorry it has been so long since I last posted I've been a bad blogger recently. The reason for this is there really hasn't been all that much to report my life has been pretty uneventful lately and that is a good thing. My health has finally stabilized after all those months and I feel better than ever ready to take on the world, okay maybe not that good but it is a lot better than I have felt along time. that's not to say there isn't anything medical going on right now. Last Friday I had an appointment at gastroenterology at UC Davis Hospital to have my feeding tube replaced, this is usually a very routine procedure that is done every three months or so to keep the tract going into my stomach healthy and clean. Usually it is pulled straight out after a special balloon holding it in place as deflated bur, I do not have a tube with a balloon I have an old-fashioned kind with a simple rubber stopper at the end so it cannot be simply pulled out like the other tube without causing severe damage to the tract and tremendous pain. In my case the doctor decided putting a scope down my throat into my stomach to remove the rubber stopper would be the best way to take it out with minimal discomfort. Last Friday I was all set to have my tube replaced but since the doctor discovered I had a different type of tube as I described it had to be put off until this Friday so they could get everything ready for the procedure. I will be sedated with a drug called versed so it won't be at all uncomfortable and I should have no recollection of what happened. This really is a routine procedure that should not cause any damage that needs to heal and I will not have to stay in the hospital after the procedure I can go home the same day which is a big relief to me because I hate hospitals! this is just a minor bump in the road that I have to get over and move on, It's just part of the life of living with muscular dystrophy, I can expect many more procedures in my lifetime and I just have to deal with them as they come. Thanks for reading it really brings me joy to know that people actually care about my little life. I never thought I would have as big of a following as I do, I even have movie producers for IMAX commenting me, what a small and wonderful world!


  1. Hey Mitch,

    I am so glad to hear you are doing alright. I was starting to worry about you buddy. ((hugs)) I will be praying for you this friday. I miss talking to you on yahoo.

    Well just know that you will always & forever be in my thoughts & prayers.

    God Bless,

  2. Hey Mitch,
    I found you through Google Alerts for "Duchenne Muscular Dystrophy". My 13-year old son has DMD so I try to learn as much as I can about it. Thank you SO much for taking the time to share your story. I LOVE the positive outlook that you have despite the difficulties that you face. You are quite an inspiration. :)