Hello Mitch, My name is Gerald Odor I have a grandson Aiden Bryce age 7 who had Duchenne muscular Dystrophy, he just had his 7th birthday August 21, 2009. Aidens dad Drake 33, his Uncle George 30 and myself Gerald 63 are off over this Labor day week end to Disneyland to Run in the Disneyland 1/2 marathon along with many other under the Parent Project Muscular Dystrophy team. We have been colleting donations to help in the research, education, advocacy, and compassion work through the PPMD group. To date we have collected over $8,000. On August 22, 2009 the day after Aidens birthday we (Team Aiden) held our 3rd annual "Run for Our Sons Poker Run" a motor cycle ride from Yuba City Ca through the Sutter Buttes, to raise funds for PPMD. note all young men are welcome to the dinner before the 1/2 marathon, last year there were 10 young boys there who also have DMD we will keep running and riding to support you and others with DMD. I will be wearing your name on my shirt this year as enter my 3rd time of the Disneyland 1/2 marathon. best wishes to you Mitch and your mom Heidi. Love Gerald Odor. geraldodor@comcast.net
Hi my name is Mitch Ball, welcome to my world! I'm a typical 24-year-old guy with an atypical body. No it's not covered in colorful tattoo's or piercings in bizarre places. The reason it's atypical is I was born with a disease called Duchenne Muscular Dystrophy(DMD). It's a genetic disease I was born with and there is no cure. In a nutshell DMD causes all the muscles in the body to waste away and weaken over time. The life expectancy for someone with DMD is greatly reduced and you rarely live much past 30. This is usually due to heart failure. I was diagnosed at the age of four, started using a manual wheelchair at 8, graduated to a power wheelchair at age 10, now at 24 I am on a ventilator full time since my muscles that control my breathing are very weak. I can barely move any of my body... I have just enough strength in my hands to drive my wheelchair and use a computer mouse. In spite of all the challenges I face day to day I live each day to the fullest and look forward to the future. It isn't always easy but having a positive outlook is something I strive for everyday. Thanks for reading my blog I hope it opens your eyes to what living life or disability is like.
Hello Mitch, My name is Gerald Odor I have a grandson Aiden Bryce age 7 who had Duchenne muscular Dystrophy, he just had his 7th birthday August 21, 2009. Aidens dad Drake 33, his Uncle George 30 and myself Gerald 63 are off over this Labor day week end to Disneyland to Run in the Disneyland 1/2 marathon along with many other under the Parent Project Muscular Dystrophy team. We have been colleting donations to help in the research, education, advocacy, and compassion work through the PPMD group. To date we have collected over $8,000.
ReplyDeleteOn August 22, 2009 the day after Aidens birthday we (Team Aiden) held our 3rd annual "Run for Our Sons Poker Run" a motor cycle ride from Yuba City Ca through the Sutter Buttes, to raise funds for PPMD. note all young men are welcome to the dinner before the 1/2 marathon, last year there were 10 young boys there who also have DMD
we will keep running and riding to support you and others with DMD. I will be wearing your name on my shirt this year as enter my 3rd time of the Disneyland 1/2 marathon. best wishes to you Mitch and your mom Heidi. Love Gerald Odor.
geraldodor@comcast.net